Research Participation

Part 1: Introductory

A conversation with neurologist Dr. Randall Bateman

Dr. Bateman, Director of the Dominantly Inherited Alzheimer's Network Trials Unit, discusses the basics of early onset Alzheimer’s disease providing context for our understanding of the current Alzheimer’s research landscape.

Research Participation

Part 2: Advanced

A conversation with neurologist Dr. Randall Bateman

Dr. Bateman, Director of the Dominantly Inherited Alzheimer's Network Trials Unit, discusses more advanced topics of Alzheimer’s research and clinical trial participation for the early onset familial Alzheimer’s disease community.

Genetic Testing

A conversation with genetic counselor Jill Goldman, CGC

Jill Goldman, a leading expert in genetic counseling for early onset familial Alzheimer’s disease patients and families, discusses the ins and outs of genetic testing, including how to know if you’re ready, what to expect, and other recommendations.

An Anonymous Story
Genetic Testing

A conversation with a community member about testing positive

Community insights on genetic testing. Here, we talk to a fellow Youngtimer about testing positive and knowing they carry an EOFAD mutation. They share their story and offer a unique perspective for those thinking about testing.

Kristina's Story

Genetic Testing

A conversation with a community member about genetic testing

Community insights on other side of genetic testing. Here, we talk to a fellow Youngtimer about their testing experience. They share their story and offer a unique perspective for those thinking about testing.

Karen's Story

Genetic Testing

A conversation with a community member about testing negative

Community insights on other side of genetic testing. Here, we talk to a fellow Youngtimer about testing negative and knowing you do not carry an EOFAD mutation. They share their story and offer a unique perspective for those thinking about testing.

Guide to Genetic Testing

Part 1

A step-by-step guide to navigating genetic testing

The Youngtimers Guide to Genetic Testing is a two-part series that helps EOFAD patients, at-risk individuals and families successfully navigate the genetic testing process, bringing in perspective and insight from experts and patients who have personal experience with genetic testing.

Guide to Genetic Testing

Part 2

A step-by-step guide to navigating genetic testing

The Youngtimers Guide to Genetic Testing is a two-part series that helps EOFAD patients, at-risk individuals and families successfully navigate the genetic testing process, bringing in perspective and insight from experts and patients who have personal experience with genetic testing.

Guide to Finding a Genetic Counselor

A guide to finding a genetic counselor that's right for you

The Youngtimers Guide to Finding a Genetic Counselor provides information about how to find a local genetic counselor and a list of genetic counselors familiar with neurodegenerative diseases such as EOFAD.

Fertility Preservation

Egg & Sperm Freezing

A conversation with fertility specialist Dr. Laxmi Kondapalli

Dr. Laxmi Kondapalli, a fertility specialist and leading expert in fertility preservation, discusses egg and sperm freezing for EOFAD patients and at-risk individuals, which also includes the first step of IVF cycle for those interested in preimplantation genetic testing.

Guide to Egg & Sperm Freezing - Part 1

A guide to understand the first part of the IVF cycle

The Youngtimers Guide to Egg Freezing is a two-part series that helps EOFAD patients, at-risk individuals and families successfully navigate fertility preservation, bringing in perspective and insight from experts and patients who have personal experience with egg retrieval procedures.

Guide to Egg & Sperm Freezing - Part 2

A guide to understand the first part of the IVF cycle

The Youngtimers Guide to Egg Freezing is a two-part series that helps EOFAD patients, at-risk individuals and families successfully navigate fertility preservation, bringing in perspective and insight from experts and patients who have personal experience with egg retrieval procedures.

Dan's Story

Legal & Financial Planning

A conversation about financial security during the disease journey

Community insights on how to successfully navigate the disease journey from a legal and financial perspective. Dan is a fellow community member who has helped his siblings affected by EOFAD. Here, he shares his story and recommendations for those seeking to plan ahead.  

EOFAD 101: Genetics

An explanation of commonly used genetics terms in EOFAD

This Youngtimers Learning Center article provides a basic understanding of genetics, including a list of commonly used genetics terms in the EOFAD community, clarifying the difference between a mutation and a gene, and explaining what autosomal dominance means.

EOFAD 101: Dementia

Understanding dementia and Alzheimer's disease

This Youngtimers Learning Center article provides a basic understanding of dementia and Alzheimer's disease. How are they related? How are they different from one another?

EOFAD 101: Treatment

Current standard treatments & investigational therapies

This Youngtimers Learning Center article provides information about current early onset familial Alzheimer’s disease treatment, including standard FDA approved and investigational therapies.

EOFAD 101: Mutations

Frequently asked questions about EOFAD mutations

This Youngtimers Learning Center article provides information about mutations that cause early onset familial  Alzheimer's disease, including how many there are, what a specific mutations means, and how to learn more about your family's mutation

EOFAD 101: Early & late onset Alzheimer's disease

Understanding the differences between EOFAD and late onset Alzheimer's disease

This Youngtimers Learning Center article clarifies the differences and similarities between early onset familial Alzheimer's disease and the more common late onset form of Alzheimer's disease.

EOFAD 101: Impact of EOFAD on Alzheimer's research

An exploration into the impact EOFAD has had on Alzheimer's research

This Youngtimers Learning Center article explores the tremendous role and impact EOFAD patients have had on Alzheimer's disease research and discoveries.

Important Notice: Youngtimers does not provide medical advice nor promote any product or service. The contents are for informational purposes only and are not intended to substitute for professional medical advice, diagnosis or treatment. Always seek advice from a qualified physician or health care professional about any medical concern, and do not disregard professional medical advice because of anything you may read on this web site. The views of individuals quoted on this site are not necessarily those of the Youngtimers.