Jetske's Story

Genetic Testing

A conversation with a community member about testing positive

Community insights on genetic testing. Here, we talk to Jetske about her story, including why she decided to pursue genetic testing, what it was like to find out her genetic status and what she is doing now to confront the disease and accelerate research.

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How to Talk to Kids about Familial Alzheimer's Disease

A conversation with social worker Dr. Hennig-Trestman

Dr. Hennig-Trestman, Director of the Carilion Clinic Huntington's Disease Program at Carilion Clinic and author of "Talking with Kids about HD" discusses effective strategies for parents to discuss and navigate familial Alzheimer's risk and diagnosis with children.

Dr. Randall Bateman, a neurologist who works with Alzheimer's patients s

Research Participation

Part 2: Advanced

A conversation with neurologist Dr. Randall Bateman

Dr. Bateman, Director of the Dominantly Inherited Alzheimer's Network Trials Unit, discusses more advanced topics of Alzheimer’s research and clinical trial participation for the early onset familial Alzheimer’s disease community.

Dr. Laxmi Kondapalli, a fertility expert who works with EOFAD patients

Fertility Preservation

Egg & Sperm Freezing

A conversation with fertility specialist Dr. Laxmi Kondapalli

Dr. Laxmi Kondapalli, a fertility specialist and leading expert in fertility preservation, discusses egg and sperm freezing for EOFAD patients and at-risk individuals, which also includes the first step of IVF cycle for those interested in preimplantation genetic testing.

Insurance for

Long-Term Care

A conversation with Aaron Eisenach about insurance solutions for Long-Term Care

Aaron Eisenach is an expert in long-term care planning solutions. In this interview, we discuss what options are available for those at-risk of developing early onset familial Alzheimer's disease.

Jill Goldman, CGC, a genetic counselor who works with Alzheimer’s patients

Genetic Testing

A conversation with genetic counselor Jill Goldman, CGC

Jill Goldman, a leading expert in genetic counseling for early onset familial Alzheimer’s disease patients and families, discusses the ins and outs of genetic testing, including how to know if you’re ready, what to expect, and other recommendations.

Dan, a financial planning expert who has worked with EOFAD patients

Dan's Story

Legal & Financial Planning

A conversation about financial security during the disease journey

Community insights on how to successfully navigate the disease journey from a legal and financial perspective. Dan is a fellow community member who has helped his siblings affected by EOFAD. Here, he shares his story and recommendations for those seeking to plan ahead.  

Dr. Randall Bateman, a neurologist who works with Alzheimer's patients s

 Research Participation

Part 1: Introductory

A conversation with neurologist Dr. Randall Bateman

Dr. Bateman, Director of the Dominantly Inherited Alzheimer's Network Trials Unit, discusses the basics of early onset Alzheimer’s disease providing context for our understanding of the current Alzheimer’s research landscape.

Strong, health brain graphic

An Anonymous Story
Genetic Testing

A conversation with a community member about testing positive

Community insights on genetic testing. Here, we talk to a fellow Youngtimer about testing positive and knowing they carry an EOFAD mutation. They share their story and offer a unique perspective for those thinking about testing.

Strong, health brain graphic

Kristina's Story

Genetic Testing

A conversation with a community member about genetic testing

Community insights on genetic testing. Here, we talk to a fellow Youngtimer about their testing experience. They share their story and offer a unique perspective for those thinking about testing.

Guide to Genetic Testing

Part 2

A step-by-step guide to navigating genetic testing

The Youngtimers Guide to Genetic Testing is a two-part series that helps EOFAD patients, at-risk individuals and families successfully navigate the genetic testing process, bringing in perspective and insight from experts and patients who have personal experience with genetic testing.

Strong, health brain graphic

Karen's Story

Genetic Testing

A conversation with a community member about testing negative

Community insights on other side of genetic testing. Here, we talk to a fellow Youngtimer about testing negative and knowing you do not carry an EOFAD mutation. They share their story and offer a unique perspective for those thinking about testing.

Guide to Egg & Sperm Freezing - Part 1

A guide to navigating egg and sperm freezing

The Youngtimers Guide to Egg Freezing is a two-part series that helps EOFAD patients, at-risk individuals and families successfully navigate fertility preservation, bringing in perspective and insight from experts and patients who have personal experience with egg retrieval procedures.

Guide to Egg & Sperm Freezing - Part 2

A guide to navigating egg and sperm freezing

The Youngtimers Guide to Egg Freezing is a two-part series that helps EOFAD patients, at-risk individuals and families successfully navigate fertility preservation, bringing in perspective and insight from experts and patients who have personal experience with egg retrieval procedures.

Guide to Caregiving

A guide written by caregivers for caregivers

The Youngtimers Guide to Caregiving was written by EOFAD caregivers addressing: how do I care for  my loved one affected by Alzheimer's disease. This guide identifies seven strategies to help caregivers provide the best care to their loved ones with early onset Alzheimer's disease.

EOFAD 101: Genetics

An explanation of commonly used genetics terms in EOFAD

This Youngtimers Learning Center article provides a basic understanding of genetics, including a list of commonly used genetics terms in the EOFAD community, clarifying the difference between a mutation and a gene, and explaining what autosomal dominance means.

EOFAD 101: Dementia

Understanding dementia and Alzheimer's disease

This Youngtimers Learning Center article provides a basic understanding of dementia and Alzheimer's disease. How are they related? How are they different from one another?

EOFAD 101: Treatment

Current standard treatments & investigational therapies

This Youngtimers Learning Center article provides information about current early onset familial Alzheimer’s disease treatment, including standard FDA approved and investigational therapies.

EOFAD 101: Mutations

Frequently asked questions about EOFAD mutations

This Youngtimers Learning Center article provides information about mutations that cause early onset familial  Alzheimer's disease, including how many there are, what a specific mutations means, and how to learn more about your family's mutation.

EOFAD 101: Early & late onset Alzheimer's disease

Understanding the differences between EOFAD and late onset Alzheimer's disease

This Youngtimers Learning Center article clarifies the differences and similarities between early onset familial Alzheimer's disease and the more common late onset form of Alzheimer's disease.

EOFAD 101: Impact of EOFAD on Alzheimer's research

An exploration into the impact EOFAD has had on Alzheimer's research

This Youngtimers Learning Center article explores the tremendous role and impact EOFAD patients have had on Alzheimer's disease research and discoveries.

Guide to Genetic Testing

Part 1

A step-by-step guide to navigating genetic testing

The Youngtimers Guide to Genetic Testing is a two-part series that helps EOFAD patients, at-risk individuals and families successfully navigate the genetic testing process, bringing in perspective and insight from experts and patients who have personal experience with genetic testing.

Important Notice: Youngtimers does not provide medical advice nor promote any product or service. The contents are for informational purposes only and are not intended to substitute for professional medical advice, diagnosis or treatment. Always seek advice from a qualified physician or health care professional about any medical concern, and do not disregard professional medical advice because of anything you may read on this website. The views of individuals quoted on this site are not necessarily those of the Youngtimers.