Jetske's Story
Genetic Testing
A conversation with a community member about testing positive
Community insights on genetic testing. Here, we talk to Jetske about her story, including why she decided to pursue genetic testing, what it was like to find out her genetic status and what she is doing now to confront the disease and accelerate research.
Genetic Testing
A conversation with genetic counselor Jill Goldman, CGC
Jill Goldman, a leading expert in genetic counseling for early onset familial Alzheimer’s disease patients and families, discusses the ins and outs of genetic testing, including how to know if you’re ready, what to expect, and other recommendations.
An Anonymous Story
Genetic Testing
A conversation with a community member about testing positive
Community insights on genetic testing. Here, we talk to a fellow Youngtimer about testing positive and knowing they carry an EOFAD mutation. They share their story and offer a unique perspective for those thinking about testing.
Kristina's Story
Genetic Testing
A conversation with a community member about genetic testing
Community insights on other side of genetic testing. Here, we talk to a fellow Youngtimer about their testing experience. They share their story and offer a unique perspective for those thinking about testing.
Karen's Story
Genetic Testing
A conversation with a community member about testing negative
Community insights on genetic testing. Here, we talk to a fellow Youngtimer about testing negative and knowing you do not carry an EOFAD mutation. They share their story and offer a unique perspective for those thinking about testing.
Guide to Genetic Testing
Part 1
A step-by-step guide to navigating genetic testing
The Youngtimers Guide to Genetic Testing is a two-part series that helps EOFAD patients, at-risk individuals and families successfully navigate the genetic testing process, bringing in perspective and insight from experts and patients who have personal experience with genetic testing.
Guide to Genetic Testing
Part 2
A step-by-step guide to navigating genetic testing
The Youngtimers Guide to Genetic Testing is a two-part series that helps EOFAD patients, at-risk individuals and families successfully navigate the genetic testing process, bringing in perspective and insight from experts and patients who have personal experience with genetic testing.
Guide to Finding a Genetic Counselor
A guide to finding a genetic counselor that's right for you
The Youngtimers Guide to Finding a Genetic Counselor provides information about how to find a local genetic counselor and a list of genetic counselors familiar with neurodegenerative diseases such as EOFAD.
EOFAD 101: Genetics
An explanation of commonly used genetics terms in EOFAD
This Youngtimers Learning Center article provides a basic understanding of genetics, including a list of commonly used genetics terms in the EOFAD community, clarifying the difference between a mutation and a gene, and explaining what autosomal dominance means.
EOFAD 101: Mutations
Frequently asked questions about EOFAD mutations
This Youngtimers Learning Center article provides information about mutations that cause early onset familial Alzheimer's disease, including how many there are, what a specific mutations means, and how to learn more about your family's mutation