Genetic Testing

A conversation with genetic counselor Jill Goldman, CGC

Jill Goldman, a leading expert in genetic counseling for early onset familial Alzheimer’s disease patients and families, discusses the ins and outs of genetic testing, including how to know if you’re ready, what to expect, and other recommendations.

An Anonymous Story
Genetic Testing

A conversation with a community member about testing positive

Community insights on genetic testing. Here, we talk to a fellow Youngtimer about testing positive and knowing they carry an EOFAD mutation. They share their story and offer a unique perspective for those thinking about testing.

Kristina's Story

Genetic Testing

A conversation with a community member about genetic testing

Community insights on other side of genetic testing. Here, we talk to a fellow Youngtimer about their testing experience. They share their story and offer a unique perspective for those thinking about testing.

Karen's Story

Genetic Testing

A conversation with a community member about testing negative

Community insights on genetic testing. Here, we talk to a fellow Youngtimer about testing negative and knowing you do not carry an EOFAD mutation. They share their story and offer a unique perspective for those thinking about testing.

Guide to Genetic Testing

Part 1

A step-by-step guide to navigating genetic testing

The Youngtimers Guide to Genetic Testing is a two-part series that helps EOFAD patients, at-risk individuals and families successfully navigate the genetic testing process, bringing in perspective and insight from experts and patients who have personal experience with genetic testing.

Guide to Genetic Testing

Part 2

A step-by-step guide to navigating genetic testing

The Youngtimers Guide to Genetic Testing is a two-part series that helps EOFAD patients, at-risk individuals and families successfully navigate the genetic testing process, bringing in perspective and insight from experts and patients who have personal experience with genetic testing.

Guide to Finding a Genetic Counselor

A guide to finding a genetic counselor that's right for you

The Youngtimers Guide to Finding a Genetic Counselor provides information about how to find a local genetic counselor and a list of genetic counselors familiar with neurodegenerative diseases such as EOFAD.

EOFAD 101: Genetics

An explanation of commonly used genetics terms in EOFAD

This Youngtimers Learning Center article provides a basic understanding of genetics, including a list of commonly used genetics terms in the EOFAD community, clarifying the difference between a mutation and a gene, and explaining what autosomal dominance means.

EOFAD 101: Mutations

Frequently asked questions about EOFAD mutations

This Youngtimers Learning Center article provides information about mutations that cause early onset familial  Alzheimer's disease, including how many there are, what a specific mutations means, and how to learn more about your family's mutation