Jetske's Story
Genetic Testing

A conversation with a community member about testing positive

Community insights on genetic testing. Here, we talk to Jetske about her story, including why she decided to pursue genetic testing, what it was like to find out her genetic status and what she is doing now to confront the disease and accelerate research.

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An Anonymous Story
Genetic Testing

A conversation with a community member about testing positive

Community insights on genetic testing. Here, we talk to a fellow Youngtimer about testing positive and knowing they carry an EOFAD mutation. They share their story and offer a unique perspective for those thinking about testing.

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Kristina's Story

Genetic Testing

A conversation with a community member about genetic testing

Community insights on other side of genetic testing. Here, we talk to a fellow Youngtimer about their testing experience. They share their story and offer a unique perspective for those thinking about testing.

Karen's Story

Genetic Testing

A conversation with a community member about testing negative

Community insights on other side of genetic testing. Here, we talk to a fellow Youngtimer about testing negative and knowing you do not carry an EOFAD mutation. They share their story and offer a unique perspective for those thinking about testing.

Dan, a financial planning expert who has worked with EOFAD patients

Dan's Story

Legal & Financial Planning

A conversation about financial security during the disease journey

Community insights on how to successfully navigate the disease journey from a legal and financial perspective. Dan is a fellow community member who has helped his siblings affected by EOFAD. Here, he shares his story and recommendations for those seeking to plan ahead.