In this live interview, Youngtimers volunteer Susan Hiatt interviews professor and author Dr. Bonnie Hennig-Trestman about talking to children about familial Alzheimer's disease (FAD). Drawing on decades of experience studying families with Huntington’s Disease, Dr. Hennig-Trestman shares age-appropriate strategies, communication tips, and emotional support techniques to help families foster trust.
In an interview with Youngtimers founder Lindsay Hohsfield, professor and author Dr. Bonnie Hennig-Trestman offers expert advice on how to talk to children about familial Alzheimer's disease (FAD). Based upon her decades of experience with Huntington’s Disease (HD), Dr. Hennig-Trestman’s shares age-appropriate strategies, communication tips, and emotional support techniques to help families foster trust — even when the future feels uncertain.
Estate planning attorney Kurt Walberg walks families through essential estate planning steps that can bring peace of mind when navigating life with familial Alzheimer's disease FAD. From medical powers of attorney to wills and trusts, this talk covers the tools you need to ensure your wishes are honored — even in the face of uncertainty.
During the fall of 2023, Dr. Cynthia Wilcox joined us for a 3-part Workshop Series on the topic of Mental Health. The experiential workshops focused on skills for the FAD journey, including how to process overwhelming thoughts and emotions, strategies and skills for caring for our own physical and emotional wellbeing, and learning how to make room for beauty and joy in addition to sorrow.
A genome is the complete set of genetic instructions fundamental to the development and function of an organism. It encompasses all the genes across the 23 pairs of chromosomes in humans, acting as a detailed instruction manual for making and maintaining an individual. Chromosomes serve as chapters in this manual, with genes as the step-by-step directions for various biological processes.
Explore the emotional and developmental impact of early-onset familial Alzheimer’s disease on children and young adults in this expert conversation with Dr. Caroline Gelman and Dr. Pat Sikes. Learn about caregiving challenges, emotional burdens, and practical support strategies for families navigating this rare condition.
In this interview, we speak with a member of the Youngtimers community who is a public advocate, a researcher and a strong voice for FAD. She has published a book and appeared on television in the Netherlands, sharing her own genetic story to help reduce isolation surrounding familial Alzheimer’s disease.
In this interview, we hear from a member of the Youngtimers community who has four family members who have tested positive for FAD genetic mutations, two of which are symptomatic. Dan has been personally involved with each of siblings on their journeys with FAD. In this interview, he shares the expertise he has gained regarding legal and financial planning in the face of FAD.
Supporting those impacted by familial Alzheimer’s disease with community, education and advocacy
PO Box 151035
San Rafael, CA, 94915
