In an interview with Youngtimers founder Lindsay Hohsfield, professor and author Dr. Bonnie Hennig-Trestman offers expert advice on how to talk to children about familial Alzheimer's disease (FAD). Based upon her decades of experience with Huntington’s Disease (HD), Dr. Hennig-Trestman’s shares age-appropriate strategies, communication tips, and emotional support techniques to help families foster trust — even when the future feels uncertain.
Explore the emotional and developmental impact of early-onset familial Alzheimer’s disease on children and young adults in this expert conversation with Dr. Caroline Gelman and Dr. Pat Sikes. Learn about caregiving challenges, emotional burdens, and practical support strategies for families navigating this rare condition.
In this interview, we’re joined by Dr. Laxmi Kondapalli to discuss assisted reproductive technologies for people who are at risk of or have a genetic mutation for FAD, and weighing the difficult decision of joining a trial or starting a family. Specifically, this interview details the ins and outs of freezing eggs or sperm to preserve fertility (also known as gamete cryopreservation).
In this interview, we’re joined by Dr. Sinem Karipcin to learn about in vitro fertilization with preimplantation genetic testing (IVF with PGT). Dr. Karipcin breaks down the science, process, and emotional journey behind this advanced reproductive technology, explaining how it works, its costs, timelines, and success rates, and whether you have to know your genetic status.
In this video, we discuss the ins and outs of genetic testing with Genetic Counselor, Jill Goldman. Goldman specializes in hereditary neurological diseases like familial Alzheimer’s disease (FAD). This interview addresses critical questions for who are considering finding out their genetic status, such as: How do I know I'm ready to undergo testing? What do I need to do before contacting a genetic counselor? What can I expect for the genetic testing process?
Supporting those impacted by familial Alzheimer’s disease with community, education and advocacy
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San Rafael, CA, 94915
