Caregiving for someone with familial Alzheimer’s disease

A Youngtimers Guide ・ Last Reviewed July 3, 2025

Over the years, we’ve heard many stories from members of our community about what they’ve experienced as their families faced familial Alzheimer’s disease (FAD).

Every story is different, but one common thread from story to story is that there is one particular character. A character who faces absolute tragedy with diligence and resilience, moving mountains and making breakfast. A quiet hero who abides with their loved one(s) from one stage to the next. 

It can feel incredibly lonely to see your loved one is caught in the grips of this awful disease. 

But you are not alone. Youngtimers is dedicated to supporting you and your loved one throughout their journey with FAD. Our organization was founded and run by people who have lost loved ones to this disease. But despite our common wounds, this community has brought us so much comfort, strength, and hope. With Youngtimers, you have an advocate, a research partner, a friend, and a place to turn even in the most difficult times. 

Youngtimers community programs can facilitate connections to those who are or have been FAD caregiver. Here are some ways you can connect to the community:

Navigating the caregiving journey

While Familial Alzheimer's Disease (FAD) is rare, caregiving for dementia is not. Millions of people around the world are caregivers for someone living with dementia. It’s one of the hardest, most complex roles a person can take on—and no two caregiving journeys are alike. Across the globe, individuals and families are sharing knowledge, building support systems, and creating tools to help others navigate this difficult path.

There’s a vast ecosystem of information available—articles, books, videos, online classes, virtual communities, and in-person support groups—all offering insights and strategies for what caregiving can look like, what challenges may arise, and how others have coped.

Youngtimers has curated a selection of these resources with FAD families in mind, but anyone navigating dementia caregiving may find them helpful.

If you have tips, suggestions, or resources that have helped you, we’d love to learn about them. Contact us.

Articles for Alzheimer’s caregivers

Classes and videos about caregiving for dementia

  • Powerful Tools for Caregivers ⧉: A caregiver class series that gives students the skills to take care of yourself while caring for someone else. By taking care of your own health and well-being, you become a better caregiver.

  • Dementia Foundations™ ⧉: An educational video series from the Dementia Society of America that empowers caregivers with foundational knowledge to help them as they support people living with dementia. It covers fundamental topics related to dementia, such as communication techniques and understanding dementia symptoms.

  • The Conversations with Caregivers ⧉:video series from UCSF offers practical advice from real family caregivers.

  • How to Meaningfully Reconnect With Those Who Have Dementia ⧉: video from a TED talk by gerontologist Anne Basting

Books about caregiving for dementia

Helpful social media content creators in Alzheimer’s care

Other resources about caregiving for dementia

Communities and organizations for Alzheimer’s caregivers

  • National Alliance for Caregiving ⧉: is a non-profit coalition of national organizations focusing on issues of family caregiving.

  • 12 Popular Online Caregiver Facebook Groups ⧉: - PDF dated 2021 from The Dementia Society of America®. As of July 2025, all groups listed were still active.

  • CaringKind ⧉: is a an NYC-based organization focused on Alzheimer’s and dementia caregiving. They provide tools and training to support individuals and families affected by dementia, such as a helpline, individual and family consultations; a vast network of support groups; education programs; early stage services and a wanderer’s safety program. CaringKind serves individuals and families within New York City. They also offer some virtual services.

  • Well Spouse ⧉: provides peer support and education about the special challenges and unique issues facing “well” spouses every day.

Youngtimers

Supporting those impacted by familial Alzheimer’s disease with community, education and advocacy

PO Box 151035
San Rafael, CA, 94915

info@youngtimers.org