Privacy Policy
Youngtimers, Inc. (“Youngtimers”) is committed to protecting your privacy. This Privacy Policy describes how Youngtimers collects, uses, shares, and protects your information when you use and interact with our Services.
Definitions
Personal Information: Information that can be used to identify you, such as your name, contact details, health-related data, and other identifying information.
Services: Websites operated or controlled by Youngtimers (including youngtimers.org), email newsletters, online programs, and other publicly available online services provided by Youngtimers.
Service Providers: Third-party companies or individuals that help Youngtimers operate the Services, including platforms for web hosting, event registration, communications, and payment processing.
Cookies: Small data files stored on your device that help us understand how users interact with our Services.
Applicability
This Privacy Policy applies to all persons who use our Services. It does not apply to third-party websites, applications, or services.
Eligibility
The Services are not directed to children under the age of sixteen (16). You may not use the Services if you are under sixteen (16).
If you do not agree with any part of this Privacy Policy, please do not use our Services.
Information We Collect
Information You Provide to Us
We collect Personal Information when you interact with our Services, including:
Membership Information: This may include your name, email address, phone number, mailing address, and health-related information such as diagnosis status, genetic risk, or personal stories about how FAD (Familial Alzheimer’s Disease) and related conditions impact you or your family. We use this information to register you for events, support your participation, and send you relevant updates.
Account Information: For certain Services, you may create an account. We may collect your username, password, and profile details. Some of this information may be visible to others.
Payment Transaction Information: If you make donations or payments, you may provide credit or debit card information, billing address, and name. Payments are processed via third-party services like PayPal.
Correspondence and Forms: If you email us, subscribe to a newsletter, or fill out a form, we may collect and retain your contact information and message content to respond and provide services.
Health Information
While Youngtimers may collect certain health-related information that you voluntarily provide (such as diagnosis status, genetic risk or status, and personal stories), we are not a “covered entity” under the Health Insurance Portability and Accountability Act (HIPAA). Accordingly, HIPAA does not apply to the data we collect.
Information We Collect Automatically
We may collect data automatically when you use our Services, including:
Cookies and Analytics: We use cookies and other tracking technologies to analyze how users interact with our Services. This may include information such as pages visited, browser type, operating system, and links clicked. We primarily analyze this data in aggregate form.
Note: Our web hosting provider, Squarespace, and email provider, Active Campaign, may use cookies for analytics purposes. We do not use cookies for advertising or social sharing. For more information, please refer to Squarespace’s Privacy Policy and Active Campaign’s Privacy Policy.
How We Use Your Information
We use your information for the following purposes:
To provide, maintain, and improve our Services;
To personalize your experience;
To support event and group registrations;
To respond to your requests or questions;
To comply with legal obligations;
To prevent harm or enforce our rights.
Email Marketing and Communication
If you opt into our newsletter or communications, we may send you updates about Youngtimers programming, FAD-related information, or events you have registered for. You may opt out of marketing communications at any time using the “unsubscribe” link or by contacting us at info@youngtimers.org.
Information Sharing
We may share your Personal Information in the following circumstances:
Youngtimers Personnel: Authorized staff and volunteers may access your data to help deliver our Services.
Other Users: If you share information publicly during events, support groups, or workshops, that information may be visible to other participants.
Service Providers: We work with trusted providers such as Squarespace, Eventbrite, Active Campaign, and PayPal to deliver our Services. These providers may process your information on our behalf. We take reasonable steps to ensure they protect your data appropriately.
Disclaimer: Youngtimers is not responsible for the data practices or security policies of third-party platforms, even if accessed through our Services.
Lawful Requests: We may disclose your information if required by law, court order, or subpoena, or if necessary to protect someone’s safety or to prevent fraud.
Data Retention
We retain information as long as necessary to fulfill the purposes described in this Privacy Policy. Some data may be kept longer as required by law or for legal obligations.
Your Rights and Choices
You may request to review, update, or delete your Personal Information by contacting us at info@youngtimers.org. You may also opt out of certain uses of your information, such as marketing communications.
Note: Removed information may still exist in backup copies for a time and may not be fully deleted.
GDPR and CCPA/CPRA Rights
If you are a resident of the European Union, United Kingdom, or California, you may have the right to:
Request access to the Personal Information we have about you;
Request corrections or deletion of your information;
Withdraw your consent to certain processing;
Object to how we use your information.
To exercise these rights, please contact info@youngtimers.org.
Security Measures
We use reasonable administrative, technical, and physical safeguards to protect your information. However, no method of transmission over the Internet is 100% secure, and we cannot guarantee absolute security.
Transfer and Storage of Data
Your information may be stored or processed in the United States or other countries where our Service Providers operate. By using our Services, you consent to the transfer of your information to those locations.
Do Not Track
We do not currently respond to “Do Not Track” signals from web browsers. You may limit some forms of tracking by disabling cookies in your browser settings.
Parental Controls
Our Services are not directed to children under 16, and we do not knowingly collect Personal Information from them. If you believe your child has submitted information to us, contact info@youngtimers.org and we will work with you to resolve the matter.
Accessibility
If you require this Privacy Policy in an alternative format due to a disability, please contact us at info@youngtimers.org.
Changes to This Policy
We may update this Privacy Policy from time to time. If material changes are made, we will notify you by email and post an update on our website.
Contact Us
For questions or requests related to your Personal Information or this policy, please contact:
Youngtimers, Inc.
PO Box 151039
San Rafael, CA 94915
United States
Email: info@youngtimers.org