In this interview, we speak with a member of the Youngtimers community who is a public advocate, a researcher and a strong voice for FAD. She has published a book and appeared on television in the Netherlands, sharing her own genetic story to help reduce isolation surrounding familial Alzheimer’s disease.

In this interview, we hear from a member of a family impacted by FAD. She talks about her father’s experience as an “escapee”, her own experience testing negative for an FAD genetic mutation, and what it means for her involvement in the Youngtimers community. 

In this interview, we hear from a member of the Youngtimers community who has four family members who have tested positive for FAD genetic mutations, two of which are symptomatic. Dan has been personally involved with each of siblings on their journeys with FAD. In this interview, he shares the expertise he has gained regarding legal and financial planning in the face of FAD.

In this interview, we hear from a member of the Youngtimers community about her experience navigating genetic testing for familial Alzheimer’s, facing the emotional impact of genetic test results, informing family members, and deciding when to share her truth with others.

In this interview, we hear from a member of the Youngtimers community whose son and husband were her inspiration to know whether she carried the genetic mutation that has plagued her family. Kristina talks about the decisions to pursue genetic testing, finding a genetic counselor through the VA, and what it was like to talk to family about her results.