Connect with the FAD community

Our community programs help the familial Alzheimer’s disease (FAD) community stay connected and informed.

Events

We host expert Q&A sessions and group discussions covering topics like mental health, financial planning, caregiving, lifestyle factors, and more.

Featured
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Oct 20
Understanding GINA: Genetic Information Protections & Familial Alzheimer’s Disease

What do genetic discrimination protections in the United States actually cover? Where are the gaps, and how does new blood biomarker testing fit in? Join us for a live virtual workshop with Jalayne J. Arias, JD, MA, Associate Professor at Georgia State University's School of Public Health, to learn about all this and more. This session is a MUST for anyone in the familial Alzheimer's disease (FAD) community thinking about testing or disclosure decisions. 

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Nov 4
Blood Biomarkers and Familial Alzheimer's Disease

Blood tests for Alzheimer's are moving fast, and more FAD families are asking what results actually mean. Join us for a live workshop with researchers Dr. Eric McDade and Dr. Suzanne Schindler, alongside FAD community members Phil and Marty, moderated by Youngtimers co-founder Lindsay. We'll cover what markers like p-tau217, NfL, and GFAP can and can't tell you, plus the real experience of deciding whether to test and living with the results.

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Support groups

Connect with others who face struggles similar to yours. Our monthly support groups are free Zoom sessions facilitated by caring moderators.

More ways to connect

Peer-to-Peer Program

Connect one-on-one with someone in the FAD community who has faced similar challenges.

Stories from the community

Hearing from others who have gone through experiences similar to your own may offer valuable perspective.

Featured
Marty’s story: Life with a PSEN2 mutation, and the test result that changed everything
Marty’s story: Life with a PSEN2 mutation, and the test result that changed everything

Youngtimers co-founder Marty Reiswig opens up about confronting a family history of familial Alzheimer’s, choosing whether to learn his genetic status, and finding purpose through research, advocacy, family, and hope for the future.

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Glenda's story: Preparing for a familial Alzheimer's disease test result
Glenda's story: Preparing for a familial Alzheimer's disease test result

After witnessing Alzheimer’s affect two generations of her family, Glenda spent seven months preparing for the possibility of carrying a familial Alzheimer’s mutation. She shares the support, planning, fear, faith, and unexpected emotions that shaped her journey—and what happened after she learned her result.

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Andres's story: Life with the PSEN1 Jalisco mutation, and the choice to stay optimistic
Andres's story: Life with the PSEN1 Jalisco mutation, and the choice to stay optimistic

After tracing generations of familial Alzheimer’s disease in his family, Andres shares what he wishes he’d known before genetic testing—and how research, advocacy, family, and everyday choices help him face the future with purpose.

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Jetske's story: Overcoming isolation in the face of familial Alzheimer's genetics
Jetske's story: Overcoming isolation in the face of familial Alzheimer's genetics

In this interview, we speak with a member of the Youngtimers community who is a public advocate, a researcher and a strong voice for FAD. She has published a book and appeared on television in the Netherlands, sharing her own genetic story to help reduce isolation surrounding familial Alzheimer’s disease.

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Insights from past events

Featured
Research updates from AAIC 2026 for the familial Alzheimer's disease community
Research updates from AAIC 2026 for the familial Alzheimer's disease community

Dr. Lindsay Hohsfield recaps AAIC 2026: new tau drugs, blood biomarkers, real-world Leqembi data, and prevention trials relevant to familial Alzheimer's disease.

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Estate planning for familial Alzheimer's disease
Estate planning for familial Alzheimer's disease

Estate planning attorney Kurt Walberg shares key steps for families facing familial Alzheimer’s, from medical powers of attorney to wills and trusts for peace of mind.

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Planning for care in familial Alzheimer's disease

In this session, Vanessa Souza from the Alzheimer’s Association discusses how to plan for care when facing Familial Alzheimer’s Disease (FAD). Whether you’re navigating a diagnosis, supporting a loved one, or just planning ahead, this video covers everything from legal documents and financial planning, employment choices, making meaningful memories, and adjustments to stay independent for longer.

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Lifestyle interventions for brain health, with Dr. Rudy Tanzi
Lifestyle interventions for brain health, with Dr. Rudy Tanzi

During this conversation, Dr. Tanzi teaches us about the role a person’s lifestyle can play in Alzheimer’s disease. He shares the lifestyle modifications he recommends for sporadic Alzheimer's disease, which might also help those at risk of familial Alzheimer’s disease.

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Mental health techniques from Dr. Cynthia Wilcox
Mental health techniques from Dr. Cynthia Wilcox

During the fall of 2023, Dr. Cynthia Wilcox joined us for a 3-part Workshop Series on the topic of Mental Health. The experiential workshops focused on skills for the FAD journey, including how to process overwhelming thoughts and emotions, strategies and skills for caring for our own physical and emotional wellbeing, and learning how to make room for beauty and joy in addition to sorrow.

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Talking to kids about familial Alzheimer's disease: a live webinar with Dr. Hennig-Trestman
Talking to kids about familial Alzheimer's disease: a live webinar with Dr. Hennig-Trestman

In this live interview, Youngtimers volunteer Susan Hiatt interviews professor and author Dr. Bonnie Hennig-Trestman about talking to children about familial Alzheimer's disease (FAD). Drawing on decades of experience studying families with Huntington’s Disease, Dr. Hennig-Trestman shares age-appropriate strategies, communication tips, and emotional support techniques to help families foster trust.

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Youngtimers

Supporting those impacted by familial Alzheimer’s disease with community, education and advocacy

PO Box 151035
San Rafael, CA, 94915

Email: info@youngtimers.org

Call or Text: 1-832-291-2809 • WhatsApp: 832-291-2809