Connect with the FAD community
Our community programs help the familial Alzheimer’s disease (FAD) community stay connected and informed.
Events
We host expert Q&A sessions and group discussions covering topics like mental health, financial planning, caregiving, lifestyle factors, and more.
Support groups
Connect with others who face struggles similar to yours. Our monthly support groups are free Zoom sessions facilitated by caring moderators.
More ways to connect
Peer-to-Peer Program
Connect one-on-one with someone in the FAD community who has faced similar challenges.
Online Communities
Stories from the community
Hearing from others who have gone through experiences similar to your own may offer valuable perspective.
Insights from past events
Estate planning attorney Kurt Walberg walks families through essential estate planning steps that can bring peace of mind when navigating life with familial Alzheimer's disease FAD. From medical powers of attorney to wills and trusts, this talk covers the tools you need to ensure your wishes are honored — even in the face of uncertainty.
In this session, Vanessa Souza from the Alzheimer’s Association discusses how to plan for care when facing Familial Alzheimer’s Disease (FAD). Whether you’re navigating a diagnosis, supporting a loved one, or just planning ahead, this video covers everything from legal documents and financial planning, employment choices, making meaningful memories, and adjustments to stay independent for longer.
During this conversation, Dr. Tanzi teaches us about the role a person’s lifestyle can play in Alzheimer’s disease. He shares the lifestyle modifications he recommends for sporadic Alzheimer's disease, which might also help those at risk of familial Alzheimer’s disease.
During the fall of 2023, Dr. Cynthia Wilcox joined us for a 3-part Workshop Series on the topic of Mental Health. The experiential workshops focused on skills for the FAD journey, including how to process overwhelming thoughts and emotions, strategies and skills for caring for our own physical and emotional wellbeing, and learning how to make room for beauty and joy in addition to sorrow.
In this live interview, Youngtimers volunteer Susan Hiatt interviews professor and author Dr. Bonnie Hennig-Trestman about talking to children about familial Alzheimer's disease (FAD). Drawing on decades of experience studying families with Huntington’s Disease, Dr. Hennig-Trestman shares age-appropriate strategies, communication tips, and emotional support techniques to help families foster trust.