What do genetic discrimination protections in the United States actually cover?
Where are the gaps, and how does new blood biomarker testing fit in? Join us for a live virtual workshop with Jalayne J. Arias, JD, MA, Associate Professor at Georgia State University's School of Public Health, to learn about all this and more.
This session is a MUST for anyone in the familial Alzheimer's disease (FAD) community thinking about testing or disclosure decisions.
About this event
In this session, Arias will walk us through:
What GINA (the Genetic Information Nondiscrimination Act) actually is, and what it does and doesn't protect you from
The gaps and limitations in GINA coverage that our community should know about
Where biomarker disclosure fits in, and whether those results carry the same protections as genetic test results
What we can do as a community to advocate for stronger protections going forward
This conversation matters because so many of our families are making decisions about testing, disclosure, and disease management without a clear picture of what's actually protected by law. We want to bring the lived experience of our community into this conversation, not just the legal theory.
About Jalayne J. Arias, JD, MA
Arias is a lawyer and researcher whose work focuses on biomarker disclosure and the ethical and legal frameworks that shape how genetic information is used and protected.
She is an Associate Professor at Georgia State University's School of Public Health.
Who should attend this event?
This conversation is open to family members in the familial Alzheimer’s disease community. The event will be recorded for those who aren’t able to make it.