What are Genetic Information Protections?
GINA provides meaningful protections for genetic information. What does that mean? And how does new blood biomarker testing fit in?
Join us for a live virtual workshop with Jalayne J. Arias, JD, MA, Associate Professor at Georgia State University's School of Public Health, to learn about all this and more.
About this event
Tuesday, October 20, 2026 at 11 AM Central (CDT)
That’s Noon Eastern (EDT), 10AM Mountain (MT), or 9AM Pacific (PDT). Convert to other time zones.
Join us for a live virtual workshop in which Jalayne J. Arias will walk us through:
The Genetic Information Nondiscrimination Act (GINA) and the protections that are provided under this law
The gaps and limitations in GINA coverage that are relevant to genetic testing for familial dementias
Where biomarker disclosure fits in and the legal mechanisms that provide privacy and discrimination protections for biomarker information
This conversation matters because so many of our families are making decisions about testing, disclosure, and disease management without a clear picture of what's protected by law. We look forward to bringing the lived experience of our community into this conversation.
About Jalayne J. Arias, JD, MA
Jalayne J. Arias, JD, MA, Associate Professor at Georgia State University's School of Public Health, for a conversation on the legal protections around genetic testing and biomarker results in familial Alzheimer's disease.
Jalayne is an interdisciplinary researcher at the intersection of legal, ethical, and policy issues relevant to Alzheimer's disease and related dementias. Her work has evaluated biomarker disclosure and the ethical and legal frameworks that shape how genetic information is used and protected.
Who should attend this event?
This conversation is open to family members in the familial Alzheimer’s disease community. The event will be recorded for those who aren’t able to make it.