Events
Join us for our virtual and free Youngtimers quarterly events! Events are not only a great opportunity to connect with fellow Youngtimers in the community, but also feature discussions with experts on specific early-onset familial Alzheimer's disease topics , such as grief, family dynamics, brain health, genetic testing, and much more!
If you are interested in joining, please register on the event's Eventbrite page (provided below). All 2023 events will be hosted on Zoom, but we look forward to organizing in-person events soon. Continue to check this page as we post recordings for past events and update details on future events.
Upcoming Events
How Is It Going? A Conversation on Talking with Kids about EOFAD
Following our workshop about Talking with Kids about EOFAD, families will meet share stories, ask questions, and talk about their concerns
Date and Time: Sunday, December 10 · 12 - 1:30pm PST
Details: In partnership with Rare Dementia Support, Youngtimers will host a joint support group to bring together individuals from the US, Canada, UK and beyond who are impacted by autosomal dominantly inherited familial Alzheimer’s disease (sometimes referred to as ADAD, DIAD or FAD). This collaboration aims to support individuals who are symptomatic, asymptomatic (confirmed positive genetic status), and at-risk (confirmed mutation in the family but genetic status unknown), and/or supporting or caregiving for someone with familial Alzheimer’s disease.
Fall 2023 Workshop Series
Mental Health - Dealing with Grief and Fear on the EOFAD Journey
In this three-part experiential workshop series, we will focus on developing the tools and skills to handle the grief and fear that accompanies the EOFAD Journey.
Presenter Cynthia Wilcox, Ph.D. is a psychologist and teacher of mindful awareness. She teaches in a variety of contexts helping people to bring awareness to their inner life and work with energy in the body to transform suffering.
Part 1: Facing the truths, feeling the feelings
Thursday, October 12 from 4-5:30 PST
Develop skills to process the overwhelming thoughts and emotions associated with the EOFAD journey
Learn more and register
Part 2: Bringing kindness and care to ourselves
Thursday, October 19 from 4-5:30 PST
Learn strategies and skills for caring for our own physical and emotional well being along the EOFAD journey
Part 3: Beyond grief and fear
Thursday, October 26 from 4-5:30 PST
Make room for beauty and joy in addition to sorrow along the EOFAD journey.
Past Events
International Support Gathering for Familial Alzheimer's Disease
Joint support group to bring together people from the US, Canada, UK, and beyond impacted by Familial Alzheimer's Disease
Date and Time: Sunday, November 19, 2023 · 11:00am - 12:30pm PST
Details: In partnership with Rare Dementia Support, Youngtimers will host a joint support group to bring together individuals from the US, Canada, UK and beyond who are impacted by autosomal dominantly inherited familial Alzheimer’s disease (sometimes referred to as ADAD, DIAD or FAD). This collaboration aims to support individuals who are symptomatic, asymptomatic (confirmed positive genetic status), and at-risk (confirmed mutation in the family but genetic status unknown), and/or supporting or caregiving for someone with familial Alzheimer’s disease.
Fall 2023 Workshop Series
Mental Health - Dealing with Grief and Fear on the EOFAD Journey
In this three-part experiential workshop series, we will focus on developing the tools and skills to handle the grief and fear that accompanies the EOFAD Journey.
Presenter Cynthia Wilcox, Ph.D. is a psychologist and teacher of mindful awareness. She teaches in a variety of contexts helping people to bring awareness to their inner life and work with energy in the body to transform suffering. Learn more about Cynthia.
Youngtimers Community Kickoff
You don't need to go it alone. Early-onset familial Alzheimer's disease is brutal, confusing, scary, and so much more. That's exactly why Youngtimers was founded by families just like yours to improve one another's lives. The co-founders and other volunteers have been working hard to create a safe, supportive, educational, and truly helpful place just for you! Join our Community Kickoff to hear what we're cooking up for you, contribute your ideas, and learn how you can participate for your own benefit and the benefit of others. We are thrilled to meet with you and grow our community support with one another. This event will not be recorded.
Date and Time: Wednesday, April 26 - 4:00 - 5:30 pm Pacific Time (US)/7:00 - 8:30 pm Eastern Time (US)
Speakers: Our Co-Founders Lindsay Hohsfield, Marty Reiswig, and Alicia Brasch
Part 3: Beyond grief and fear
Make room for beauty and joy in addition to sorrow along the EOFAD journey.
When facing life’s difficulties, it is natural that we focus our lens of perception on those difficulties. Remembering to widen our lens to include love, beauty, and joy in the midst of it all supports our resiliency and enables us to move forward with life in the most balanced way possible. Changes are inevitable, and we can remember what matters most and embrace the parts of our lives that bring us joy and fulfillment.
Date and Time: Thursday, October 26 from 4-5:30 PST
Speaker: Presenter Cynthia Wilcox, Ph.D.
Talking with Kids about Early Onset Familial Alzheimer's Disease
Learn effective strategies and recommendations for talking to children about EOFAD. As more individuals take part in research and drug trials, it is helpful to have a framework ready to discuss this difficult topic with our children. Some questions include:
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Is it beneficial or detrimental to shield children from knowledge about EOFAD in the family?
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What are the pros and cons of telling children this information?
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What is the best way to disclose this information?
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How to disclose information in an age-appropriate manner?
Date and Time: Thursday, June 29, 2023 · 6 - 7pm CDT/4-6pm PDT
Speakers: Presenter Dr. Hennig-Trestman is an Assistant Professor at the Virginia Tech Carilion School of Medicine and Director of the Carilion Clinic Huntington's Disease Program at Carilion Clinic. She is also the author of the book: "Talking with Kids about HD." She has over 30 years of expertise providing and guiding clinical services to patients and families suffering from neurodegenerative disease. Her research focuses on developing effective strategies for parents to discuss and navigate a Huntington's disease, a disease very similar to early onset familial Alzheimer's disease (EOFAD), risk and diagnosis with children.
Part 2: Bringing kindness and care to ourselves
Learn strategies and skills for caring for our own physical and emotional well being along the EOFAD journey
Whether in the role of caregiver, newly diagnosed patient, or genetic carrier, the capacity to tend to our own physical and emotional well being—to hold ourselves with care and tenderness—is essential. We can develop strategies and skills for offering this care to ourselves and learn to make choices that support our well being. This experiential workshop focuses on recognizing our tendency to set aside our own needs as well as developing specific ways to shift our attitudes and bring care to ourselves.
Date and Time: Thursday, October 19 from 4-5:30 PST
Speaker: Cynthia Wilcox, Ph.D.
Part 1: Facing the truth, feeling the feelings
Develop skills to process the overwhelming thoughts and emotions associated with the EOFAD journey.
Often when we are facing difficult circumstances, we are initially overwhelmed with thoughts and emotions—grief, fear, how will I go forward? Natural defenses range from avoiding the thoughts and feelings, to becoming absorbed in “figuring out” solutions. When we develop the tools and skills to process the emotion, we discover our resilience and capacity to be with life as it is. We are less overwhelmed, and our capacity to function effectively is enhanced. This experiential workshop focuses on cognitive and somatic skills, with opportunities to practice and ask questions.
Date and Time: Thursday, October 12 from 4-5:30 PST
Speakers: Cynthia Wilcox, Ph.D.
Lifestyle Interventions for Brain Health Q&A with Dr. Rudy Tanzi
Do you ever wonder about what you can do to prevent or delay the onset of Familial Alzheimer's Disease? Join the Q & A with Dr. Rudy Tanzi
Date and Time: Thursday, February 8, 2024 · 12 - 1pm PST
Details: During this conversation, Dr. Tanzi will teach us about the role a person’s lifestyle can play in Alzheimer’s disease. We will also discuss what lifestyle modifications recommended for sporadic Alzheimer's disease might apply to familial Alzheimer’s disease. Lindsay Hohsfield will be asking Dr. Tanzi questions from our community. Please submit your questions to info@youngtimers.org before January 20th. We will open up the call for other questions from attendees toward the end of the workshop.
This event is open to anyone in the Dominant Inherited Alzheimer's Disease and Autosomal Dominant community.
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