Join us for our virtual and free Youngtimers quarterly events! Events are not only a great opportunity to connect with fellow Youngtimers in the community, but also feature discussions with experts on specific early-onset familial Alzheimer's disease topics , such as grief, family dynamics, brain health, genetic testing, and much more!
If you are interested in joining, please register on the event's Eventbrite page (provided below). All 2023 events will be hosted on Zoom, but we look forward to organizing in-person events soon. Continue to check this page as we post recordings for past events and update details on future events.
Fall 2023 Workshop Series
Mental Health - Dealing with Grief and Fear on the EOFAD Journey
In this three-part experiential workshop series, we will focus on developing the tools and skills to handle the grief and fear that accompanies the EOFAD Journey.
Presenter Cynthia Wilcox, Ph.D. is a psychologist and teacher of mindful awareness. She teaches in a variety of contexts helping people to bring awareness to their inner life and work with energy in the body to transform suffering.
Thursday, October 12 from 4-5:30 PST
Thursday, October 19 from 4-5:30 PST
Learn strategies and skills for caring for our own physical and emotional well being along the EOFAD journey
Part 3: Beyond grief and fear
Thursday, October 26 from 4-5:30 PST
Make room for beauty and joy in addition to sorrow along the EOFAD journey.
Talking with Kids about Early Onset Familial Alzheimer's Disease
Learn effective strategies and recommendations for talking to children about EOFAD. As more individuals take part in research and drug trials, it is helpful to have a framework ready to discuss this difficult topic with our children. Some questions include:
Is it beneficial or detrimental to shield children from knowledge about EOFAD in the family?
What are the pros and cons of telling children this information?
What is the best way to disclose this information?
How to disclose information in an age-appropriate manner?
Date and Time: Thursday, June 29, 2023 · 6 - 7pm CDT/4-6pm PDT
Speakers: Presenter Dr. Hennig-Trestman is an Assistant Professor at the Virginia Tech Carilion School of Medicine and Director of the Carilion Clinic Huntington's Disease Program at Carilion Clinic. She is also the author of the book: "Talking with Kids about HD." She has over 30 years of expertise providing and guiding clinical services to patients and families suffering from neurodegenerative disease. Her research focuses on developing effective strategies for parents to discuss and navigate a Huntington's disease, a disease very similar to early onset familial Alzheimer's disease (EOFAD), risk and diagnosis with children.
Youngtimers Community Kickoff
You don't need to go it alone. Early-onset familial Alzheimer's disease is brutal, confusing, scary, and so much more. That's exactly why Youngtimers was founded by families just like yours to improve one another's lives. The co-founders and other volunteers have been working hard to create a safe, supportive, educational, and truly helpful place just for you! Join our Community Kickoff to hear what we're cooking up for you, contribute your ideas, and learn how you can participate for your own benefit and the benefit of others. We are thrilled to meet with you and grow our community support with one another. This event will not be recorded.
Date and Time: Wednesday, April 26 - 4:00 - 5:30 pm Pacific Time (US)/7:00 - 8:30 pm Eastern Time (US)
Speakers: Our Co-Founders Marty Reiswig, Alicia Brasch, and Lindsay Hohsfield