Do we tell them? How can we explain? Is it too much for them? Raising kids is hard enough, how do we do it in an FAD family? Come learn.

About the event

During this conversation, Dr. Hennig-Trestman will be talking about effective strategies and her recommendations for talking to children about FAD. As more individuals take part in research and drug trials, it is helpful to have a framework ready to discuss this difficult topic with our children. Some questions include: Is it beneficial or detrimental to shield children from knowledge about FAD in the family? What are the pros and cons of telling children this information? What is the best way to disclose this information? How to disclose information in an age-appropriate manner?

About our speaker, Dr. Bonnie Hennig-Trestman

Dr. Hennig-Trestman is an Assistant Professor at the Virginia Tech Carilion School of Medicine and Director of the Carilion Clinic Huntington's Disease Program at Carilion Clinic. She is also the author of the book: Talking with Kids about HD (Amazon).

She has over 30 years of expertise providing and guiding clinical services to patients and families suffering from neurodegenerative disease. Her research focuses on developing effective strategies for parents to discuss and navigate a Huntington's disease, a disease very similar to familial Alzheimer's disease (FAD), risk and diagnosis with children.

Event recap

After the event, we posted video and a writeup for those who were unable to attend live. View them here.

Registration is now closed, but the registration page on Eventbrite can be found here ⧉.