Online communities for familial Alzheimer’s disease
The Facebook group and online forum are available 24/7, and helping members get input from others in the worldwide community whenever a question arises.
Back in 2011, Marty Reiswig and his brother Matt noticed it was tough to find others dealing with the same thing their family was. They created a Facebook group to give others like themselves a chance to connect and share information.
This private Facebook group, called the Dominantly Inherited Alzheimer’s Disease (DIAD) Private Group, connects people with FAD from all over
The group now connects over 600 members who share information and support one another.
The Facebook group does not belong exclusively to Youngtimers - in fact, it was created before Youngtimers was founded! But it’s one place that members of our community connect.
The group is private, though Facebook is not an anonymous platform. New requests to join the group are vetted by the group’s administrations. Only members can see who's in the group and what they post, and members of the page have the option to post anonymously.
If you’re interested, join the Dominantly Inherited Alzheimer’s Disease (DIAD) Private Group on Facebook.
Forum
In 2024, one member of the Youngtimers community noticed a trend: the same questions arise frequently the Facebook Group as new members join. This means that community insight and advice is distributed across multiple posts over time, instead of aggregated in one place.
He imagined a community where discussions were organized in threads so when new people join, they see all the history on a topic.
Additionally, especially because the disease is familial, he wanted to make it a place where one could participate with total anonymity. That way, they could speak freely without worrying about what family members might think.
A few months later, our forum was born! It’s still quite new, but it’s a great place to connect with others in the community.
Interested in joining? Create an account at EOFAD.com.