In this live interview, Youngtimers volunteer Susan Hiatt interviews professor and author Dr. Bonnie Hennig-Trestman about talking to children about familial Alzheimer's disease (FAD). Drawing on decades of experience studying families with Huntington’s Disease, Dr. Hennig-Trestman shares age-appropriate strategies, communication tips, and emotional support techniques to help families foster trust.
In an interview with Youngtimers founder Lindsay Hohsfield, professor and author Dr. Bonnie Hennig-Trestman offers expert advice on how to talk to children about familial Alzheimer's disease (FAD). Based upon her decades of experience with Huntington’s Disease (HD), Dr. Hennig-Trestman’s shares age-appropriate strategies, communication tips, and emotional support techniques to help families foster trust — even when the future feels uncertain.
Explore the emotional and developmental impact of early-onset familial Alzheimer’s disease on children and young adults in this expert conversation with Dr. Caroline Gelman and Dr. Pat Sikes. Learn about caregiving challenges, emotional burdens, and practical support strategies for families navigating this rare condition.
This handbook, published by the Huntington’s Disease Society of America, is intended to help families with Huntington’s Disease (HD) communicate openly about HD with the children, teens and young adults in their family, to help them lead positive and satisfying lives, whatever their gene status. Because HD is a inherited, progressive brain disorders that affect families across generations just like familial Alzheimer’s disease (FAD), this handbook is recommended by some genetic counselors for families with FAD genetics.
Supporting those impacted by familial Alzheimer’s disease with community, education and advocacy
PO Box 151035
San Rafael, CA, 94915
