This handbook, published by the Huntington’s Disease Society of America, is intended to help families with Huntington’s disease (HD) communicate openly about HD with the children, teens and young adults in their family, to help them lead positive and satisfying lives, whatever their gene status.
Like familial Alzheimer’s disease (FAD), Huntington’s Disease is a inherited, progressive brain disorders that affect families across generations. That’s why some genetic counselors recommend this handbook for families with FAD genetics looking for insight on how to talk to kids about the disease.