In this interview, we speak with a member of the Youngtimers community who is a public advocate, a researcher and a strong voice for FAD. She has published a book and appeared on television in the Netherlands, sharing her own genetic story to help reduce isolation surrounding familial Alzheimer’s disease.
Karen’s story: Escaping a familial Alzheimer’s disease genetic mutation
The weight of knowing: living with one's genetic results for familial Alzheimer’s
Genetic testing for familial Alzheimer's disease, a conversation with Genetic Counselor Jill Goldman
In this video, we discuss the ins and outs of genetic testing with Genetic Counselor, Jill Goldman. Goldman specializes in hereditary neurological diseases like familial Alzheimer’s disease (FAD). This interview addresses critical questions for who are considering finding out their genetic status, such as: How do I know I'm ready to undergo testing? What do I need to do before contacting a genetic counselor? What can I expect for the genetic testing process?
Kristina’s story: Genetic testing, hope, and support in the face of familial Alzheimer’s genetics
In this interview, we hear from a member of the Youngtimers community whose son and husband were her inspiration to know whether she carried the genetic mutation that has plagued her family. Kristina talks about the decisions to pursue genetic testing, finding a genetic counselor through the VA, and what it was like to talk to family about her results.