This event, Learning One’s Genetic Status: The Long-Term Impact, has been postponed.
Our presenter recently experienced the loss of a dear friend, and we want to give her space and timeduring this difficult period. We know you’ll understand and join us in sending care and compassion her way.
A new date and time will be announced soon. When that happens, those who previously registered will be automatically registered for the rescheduled session.
Thank you for your understanding and continued support of our Youngtimers community.
How does it impact a person long-term to know that they carry a genetic mutation that causes familial Alzheimer's disease?
About this event
People considering genetic testing often wonder how it will impact their lives if they learn they carry a mutation that causes familial Alzheimer's disease (FAD).
Jetske Van der Schaar surveyed the DIAN community to get an understanding of what the impact over time would be. Please join us as Jetske shares these findings and valuable perspectives gathered.
At the end of the presentation, we plan to leave time for community discussion around getting genetic testing. Hope to see you there!
About Jetske van der Schaar
Jetske van der Schaar is a public advocate and strong voice for FAD. She has appeared on national television in the Netherlands to share her genetic status and break the stigma surrounding this disease. Jetske is a MSc/PhD candidate and Research Associate at Amsterdam UMC. She investigates medical ethical dilemmas in early stages of Alzheimer's disease. She regularly writes and speaks about hereditary dementia.
You can learn more about Jetske's personal story about overcoming isolation in the face of familial Alzheimer's genetics in this interview with Youngtimers.
She investigates medical ethical dilemmas in early stages of Alzheimer's disease. She regularly writes and speaks about hereditary dementia. She is also the author of a book called Eeuwige Lente, which means eternal spring, a story about her life and struggle for hope, and the personal impact of FAD.
Who should attend?
This conversation is open to family members and researchers or professionals in the early Alzheimer's disease community.
Event Recap
After the event, we’ll post video and a writeup of the event for those who were unable to attend.