In this interview, we speak with a member of the Youngtimers community who is a public advocate, a researcher and a strong voice for FAD. She has published a book and appeared on television in the Netherlands, sharing her own genetic story to help reduce isolation surrounding familial Alzheimer’s disease.
Karen’s story: Escaping a familial Alzheimer’s disease genetic mutation
Dan's story: Legal and financial tips from a family with familial Alzheimer's disease
In this interview, we hear from a member of the Youngtimers community who has four family members who have tested positive for FAD genetic mutations, two of which are symptomatic. Dan has been personally involved with each of siblings on their journeys with FAD. In this interview, he shares the expertise he has gained regarding legal and financial planning in the face of FAD.
The weight of knowing: living with one's genetic results for familial Alzheimer’s
Kristina’s story: Genetic testing, hope, and support in the face of familial Alzheimer’s genetics
In this interview, we hear from a member of the Youngtimers community whose son and husband were her inspiration to know whether she carried the genetic mutation that has plagued her family. Kristina talks about the decisions to pursue genetic testing, finding a genetic counselor through the VA, and what it was like to talk to family about her results.