Tools, resources and support as you consider Alzheimer's research
A Youngtimers Guide ・ Last Reviewed Nov 12 2025
Even though FAD is rare, you're not alone. Many members of the FAD community have faced the decision of whether to participate in Alzheimer’s research.
Youngtimers community programs can facilitate connections to those who have been through the same decision.
Leverage our peer-to-peer program to connect one-on-one with others who have either participated in research themselves, or faced the decision.
Join the DIAD Private Facebook Group ⧉
Browse the EOFAD Online Forum ⧉
If you’re interested in getting involved in research and want to learn about new opportunities.
Should you participate in Alzheimer’s research?
The choice to participate in research is deeply personal and profoundly generous.
For some, joining a study offers a sense of agency, something tangible to do in the face of an overwhelming disease. For others, the timing isn’t right, the risks are too high, or life simply won’t allow it. All of these responses are valid.
You don’t owe anyone your body or your data. There is no “right” choice—only the one that aligns best with your values, your needs, and your capacity to contribute.
Alzheimer’s has proven to be a difficult challenge, and every research visit, vial, and scan moves us closer to a world without Alzheimer’s.
Those who cannot participate in research personally still play a big role in the success of research. Whether you’re caring for a loved one, helping others weigh tough decisions about genetic testing and research participation, showing up to help when someone has to travel for a study, or advocating for Alzheimer’s funding, you’re a valuable part of the Youngtimers community.
Ask the Expert Videos: Familial Alzheimer’s Disease Research
