Explore the emotional and developmental impact of early-onset familial Alzheimer’s disease on children and young adults in this expert conversation with Dr. Caroline Gelman and Dr. Pat Sikes. Learn about caregiving challenges, emotional burdens, and practical support strategies for families navigating this rare condition.
In this interview, we speak with a member of the Youngtimers community who is a public advocate, a researcher and a strong voice for FAD. She has published a book and appeared on television in the Netherlands, sharing her own genetic story to help reduce isolation surrounding familial Alzheimer’s disease.
In this interview, we’re joined by Dr. Laxmi Kondapalli to discuss assisted reproductive technologies for people who are at risk of or have a genetic mutation for FAD, and weighing the difficult decision of joining a trial or starting a family. Specifically, this interview details the ins and outs of freezing eggs or sperm to preserve fertility (also known as gamete cryopreservation).
In this interview, we’re joined by Dr. Sinem Karipcin to learn about in vitro fertilization with preimplantation genetic testing (IVF with PGT). Dr. Karipcin breaks down the science, process, and emotional journey behind this advanced reproductive technology, explaining how it works, its costs, timelines, and success rates, and whether you have to know your genetic status.
In this video, we discuss the ins and outs of genetic testing with Genetic Counselor, Jill Goldman. Goldman specializes in hereditary neurological diseases like familial Alzheimer’s disease (FAD). This interview addresses critical questions for who are considering finding out their genetic status, such as: How do I know I'm ready to undergo testing? What do I need to do before contacting a genetic counselor? What can I expect for the genetic testing process?
In this interview, we hear from a member of the Youngtimers community whose son and husband were her inspiration to know whether she carried the genetic mutation that has plagued her family. Kristina talks about the decisions to pursue genetic testing, finding a genetic counselor through the VA, and what it was like to talk to family about her results.
This handbook, published by the Huntington’s Disease Society of America, is intended to help families with Huntington’s Disease (HD) communicate openly about HD with the children, teens and young adults in their family, to help them lead positive and satisfying lives, whatever their gene status. Because HD is an inherited, progressive brain disorder that affects families across generations just like familial Alzheimer’s disease (FAD), this handbook is recommended by some genetic counselors for families with FAD genetics.
Supporting those impacted by familial Alzheimer’s disease with community, education and advocacy
PO Box 151035
San Rafael, CA, 94915
Email: info@youngtimers.org
Call or Text: 1-832-291-2809 • WhatsApp: 832-291-2809
